CAM Conference
July 2005 | Whole Health
Beating Breast Cancer
Choosing Alternative Treatments
By Rebecca Ephraim, R.D., C.C.N.
“I was pissed! I don’t want to go through it again. But then I just said to myself, OK, I’ll deal with it.”
Gulp. I didn’t know what I expected to hear from Ann Fonfa, the widely known patient advocate who’s become a model for thousands of women looking for direction once they’ve been diagnosed with breast cancer. But it wasn’t this.
Fonfa maintains a highly regarded website that offers voluminous resource information for complementary and alternative breast cancer therapies (see Info Box). Importantly, her site serves breast cancer patients who want to straddle the worlds of conventional treatment and complementary and alternative medicine (CAM) but often find that their doctors offer little knowledge or inclination to combine the approaches.
From 1993 until late 2001, Fonfa, 57, grappled with recurring tumors on the chest wall of her left breast. Although she had numerous surgeries, she rejected chemotherapy and radiation and opted for a mélange of complementary therapies that purported cancer-cell killing properties. Among them: maitake mushroom extract, high-dose vitamins, coffee enemas and Chinese herbs.
It was a long slog, but in late 2001, she got the pronouncement: cancer free.
Although Fonfa’s strength and resilience for plodding along all those years earned her a loyal following, I imagine that it was the “I beat cancer” status that put her over the top for being the “go to” resource.
And now, in our phone interview in late May, she’s telling me that just a few days before, she believes she discovered a new lump and has started CAM treatments for it. She got an MRI and is waiting for confirmation. In a calm and measured tone, Fonfa says, “This goes under the heading of, ‘It is never over with breast cancer.’ ”
My list of suitable questions suddenly turns irrelevant. And I, who have never had anything worse than a case of ferocious flu, falter in what to say in response. “I’m so sorry,” came to mind but her optimism beat me to it.
“I don’t care to focus on being fearful. It’s just not beneficial for me,” she continues with a confidence that’s stunning, given what she’s just announced. “I’m a very upbeat person, anyway. My perspective is that I can go forward and work with finding ways to be healthy again.”
Upon consulting with her Chinese herbalist, Fonfa began a treatment regimen of herbal plasters to her chest, special herbal teas, modified citrus pectin, an immune booster called Immpower and a fermented Hungarian wheat product that she says has good studies showing it helps kill cancer cells.
However, she emphasizes that each woman needs to intelligently decide — with the help of her practitioner(s) — what the best approaches are for her. “It’s a heavy responsibility to have someone decide that I have the answers because it’s not very clear that there are specific answers. We’re all a little bit different,” she says.
Pick A Path
Fonfa packs her website with information from both conventional and CAM scientific conferences (which she attends regularly), peer-reviewed research and perspectives from other cancer patients who have tried various therapies and reported on their success. She weaves it together with a let’s-talk-over-tea narrative.
She quotes liberally from the writings and reports of authorities in the field, including Ralph Moss, Ph.D., who’s also a patient advocate, author and recognized cancer treatment expert specializing in evaluating the claims of various cancer treatments and publishing them in his Moss Reports.
He agrees with Fonfa that breast cancer is one of the more complicated cancers. “It’s hard to speak of breast cancer in one breath as a totality,” he cautions. “It really requires some serious study on the part of the person who has been diagnosed.” To that end, he offers his Moss Reports (cost of $297 each) on specific cancers to help guide a patient to appropriate treatments that include complementary and alternative approaches (there are also others who do this, see Info Box).
He believes, from his research, that surgery is still the main line of defense against early-stage breast cancer but speaks optimistically of adjunctive treatment options that aren’t widely known, such as heat therapy (aka hyperthermia), mistletoe (widely used in Europe), and extracts from various Asian mushrooms (including the maitake extracts that Fonfa has used).
He questions the categorical use of radiation and chemotherapy, although he stops far from rejecting their use. But he and Fonfa both criticize the side effects of the treatments and agree that, if chemo or radiation is chosen, their side effects can be moderated with complementary and alternative modalities.
Whatever the path, Fonfa says a woman needs to empower herself with a program that feels right, and then stick to it. “What everyone has to do is look at the variety of possibilities. (many of which are listed on our site) and go through them and see what appeals to you. You have to create a program for yourself and you have to follow it! No one gets well by doing it half-assed.”
Regardless, she suggests that everyone’s treatment should include excellent nutrition (Fonfa is vegan), dietary supplements, exercise and a detoxification program. Combine this with a mind-body-spirit connection, “whatever that is,” she adds. “I love to garden.”
The Roadblock To Cam
The biggest roadblock to pursuing CAM therapies, which can moderate symptoms and contribute to healing, are the conventional M.D.s — oncologists who are, by and large, the gatekeepers of treatment.
Moss, having recently attended the conference of the American Society of Clinical Oncologists, frames the challenge for a cancer patient who wants to explore alternative therapies: “Certainly we’re seeing less overt hostility coming from the conventional medical field…it’s now more a matter of neglect rather than active hostile opposition.”
Naturopathic physician Dan Labriola suggests in his book, Complementary Cancer Therapies, that you choose your doctors carefully. “Most people spend more time shopping for a new car than they do picking their doctors,” Dr. Labriola writes. “Selecting providers who are willing and able to work together to provide the kind of care that you want is one of the most significant steps in your battle with cancer, as well as essential to your general health and well-being.”
Fonfa is a fierce advocate for finding a practitioner who will embrace a patient’s exploration of CAM therapies. In fact, she mentions a new organization: the Society for Integrative Oncology.
However, she will have no need for it at this time — a few days after our interview I received this short e-mail:
Dear Rebecca,
A minute ago I got a copy of the report from an MRI I took. Apparently I do NOT have a new tumor. My husband is in tears so I must go.—Ann F.
Rebecca Ephraim is a registered dietitian and certified clinical nutritionist. Nancy Evans contributed to this story.
Source: http://wholelifetimes.com/2005/wlt2707/wh_breastcancer2707.html
Beating Breast Cancer
Choosing Alternative Treatments
By Rebecca Ephraim, R.D., C.C.N.
“I was pissed! I don’t want to go through it again. But then I just said to myself, OK, I’ll deal with it.”
Gulp. I didn’t know what I expected to hear from Ann Fonfa, the widely known patient advocate who’s become a model for thousands of women looking for direction once they’ve been diagnosed with breast cancer. But it wasn’t this.
Fonfa maintains a highly regarded website that offers voluminous resource information for complementary and alternative breast cancer therapies (see Info Box). Importantly, her site serves breast cancer patients who want to straddle the worlds of conventional treatment and complementary and alternative medicine (CAM) but often find that their doctors offer little knowledge or inclination to combine the approaches.
From 1993 until late 2001, Fonfa, 57, grappled with recurring tumors on the chest wall of her left breast. Although she had numerous surgeries, she rejected chemotherapy and radiation and opted for a mélange of complementary therapies that purported cancer-cell killing properties. Among them: maitake mushroom extract, high-dose vitamins, coffee enemas and Chinese herbs.
It was a long slog, but in late 2001, she got the pronouncement: cancer free.
Although Fonfa’s strength and resilience for plodding along all those years earned her a loyal following, I imagine that it was the “I beat cancer” status that put her over the top for being the “go to” resource.
And now, in our phone interview in late May, she’s telling me that just a few days before, she believes she discovered a new lump and has started CAM treatments for it. She got an MRI and is waiting for confirmation. In a calm and measured tone, Fonfa says, “This goes under the heading of, ‘It is never over with breast cancer.’ ”
My list of suitable questions suddenly turns irrelevant. And I, who have never had anything worse than a case of ferocious flu, falter in what to say in response. “I’m so sorry,” came to mind but her optimism beat me to it.
“I don’t care to focus on being fearful. It’s just not beneficial for me,” she continues with a confidence that’s stunning, given what she’s just announced. “I’m a very upbeat person, anyway. My perspective is that I can go forward and work with finding ways to be healthy again.”
Upon consulting with her Chinese herbalist, Fonfa began a treatment regimen of herbal plasters to her chest, special herbal teas, modified citrus pectin, an immune booster called Immpower and a fermented Hungarian wheat product that she says has good studies showing it helps kill cancer cells.
However, she emphasizes that each woman needs to intelligently decide — with the help of her practitioner(s) — what the best approaches are for her. “It’s a heavy responsibility to have someone decide that I have the answers because it’s not very clear that there are specific answers. We’re all a little bit different,” she says.
Pick A Path
Fonfa packs her website with information from both conventional and CAM scientific conferences (which she attends regularly), peer-reviewed research and perspectives from other cancer patients who have tried various therapies and reported on their success. She weaves it together with a let’s-talk-over-tea narrative.
She quotes liberally from the writings and reports of authorities in the field, including Ralph Moss, Ph.D., who’s also a patient advocate, author and recognized cancer treatment expert specializing in evaluating the claims of various cancer treatments and publishing them in his Moss Reports.
He agrees with Fonfa that breast cancer is one of the more complicated cancers. “It’s hard to speak of breast cancer in one breath as a totality,” he cautions. “It really requires some serious study on the part of the person who has been diagnosed.” To that end, he offers his Moss Reports (cost of $297 each) on specific cancers to help guide a patient to appropriate treatments that include complementary and alternative approaches (there are also others who do this, see Info Box).
He believes, from his research, that surgery is still the main line of defense against early-stage breast cancer but speaks optimistically of adjunctive treatment options that aren’t widely known, such as heat therapy (aka hyperthermia), mistletoe (widely used in Europe), and extracts from various Asian mushrooms (including the maitake extracts that Fonfa has used).
He questions the categorical use of radiation and chemotherapy, although he stops far from rejecting their use. But he and Fonfa both criticize the side effects of the treatments and agree that, if chemo or radiation is chosen, their side effects can be moderated with complementary and alternative modalities.
Whatever the path, Fonfa says a woman needs to empower herself with a program that feels right, and then stick to it. “What everyone has to do is look at the variety of possibilities. (many of which are listed on our site) and go through them and see what appeals to you. You have to create a program for yourself and you have to follow it! No one gets well by doing it half-assed.”
Regardless, she suggests that everyone’s treatment should include excellent nutrition (Fonfa is vegan), dietary supplements, exercise and a detoxification program. Combine this with a mind-body-spirit connection, “whatever that is,” she adds. “I love to garden.”
The Roadblock To Cam
The biggest roadblock to pursuing CAM therapies, which can moderate symptoms and contribute to healing, are the conventional M.D.s — oncologists who are, by and large, the gatekeepers of treatment.
Moss, having recently attended the conference of the American Society of Clinical Oncologists, frames the challenge for a cancer patient who wants to explore alternative therapies: “Certainly we’re seeing less overt hostility coming from the conventional medical field…it’s now more a matter of neglect rather than active hostile opposition.”
Naturopathic physician Dan Labriola suggests in his book, Complementary Cancer Therapies, that you choose your doctors carefully. “Most people spend more time shopping for a new car than they do picking their doctors,” Dr. Labriola writes. “Selecting providers who are willing and able to work together to provide the kind of care that you want is one of the most significant steps in your battle with cancer, as well as essential to your general health and well-being.”
Fonfa is a fierce advocate for finding a practitioner who will embrace a patient’s exploration of CAM therapies. In fact, she mentions a new organization: the Society for Integrative Oncology.
However, she will have no need for it at this time — a few days after our interview I received this short e-mail:
Dear Rebecca,
A minute ago I got a copy of the report from an MRI I took. Apparently I do NOT have a new tumor. My husband is in tears so I must go.—Ann F.
Rebecca Ephraim is a registered dietitian and certified clinical nutritionist. Nancy Evans contributed to this story.
Source: http://wholelifetimes.com/2005/wlt2707/wh_breastcancer2707.html
