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Barbara H speaks out:
"I just read your article on Management of DCIS and would like to offer some
important feedback.
The pendulum has now swung so far away from doing mastectomies that they are
not being done when they should. Here is my story:
I had a wide excision followed by radiation for DCIS in 1977. In Oct. 2001
I had a local recurrence. (Stage II cancer) I was at high risk of a
recurrence - high nuclear grade, comedo-necrosis, 40 years old; multi-focal
tumor -- although I didn't know this at the time. While the study you quote
mentions such wonderful survival at 8 years, this is a highly misleading
figure. From what I read, also in studies by M Silverstein, the risk of
recurrence increases over time. Most women won't have had a recurrence
until at least several years have passed. Of course, they are still alive
at 8 years - but maybe not at 10. And certainly not at the ripe old age
they would have gotten to, had they had a simple mastectomy. And while they
are alive at 8 years, this may be after chemotherapy (a nightmare) and
axillary node dissection (a life changing event) and tamoxifen (an awful
drug to have to take.) I have found lots of research on the web by
mainstream doctors that shows increased rates of recurrence following L/R -
yet they continue to refuse to recommend the most effective and simplest
solution: a mastectomy.
It's criminal, and in many cases, equivalent to
murder.
Since you obviously do your research, I thought you'd like to know
about this."
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