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Austin, TX; Aug 13-15, 2004
I attended this conference to
receive relevant training for the sustainability and expansion of the CARE (Cancer Awareness, Resources and Education),
Psycho-Educational Theatre Project* as well as for the CARE program in
general.
General Session: Infrastructure Development: Marion Lee of Greenlights for
Nonprofit Success
Ms. Lee discussed the importance of developing and regularly updating your
bylaws, strategic plan, development plan, marketing plan, and contingency
plan.
While much of her discussion focused on managing autonomous nonprofit
organizations (unlike CARE, which is under the auspices of the SFGH
Foundation) much of the information was useful and certainly modifiable to
the structure of our program. (Ms. Walcer is the Director of CARE for San Francisco General Hospital).
As a dependent program, we have a Board of
Advisors rather than a Board of Directors.
A BOD could strengthen the CARE
program by systematizing the afore mentioned Board responsibilities as well
as providing an additional fundraising mechanism.
Our limited staff
compromises CARE's ability to be as meticulous as we should be in planning
and development. Still, it remains crucial to our growth and sustainability
to better incorporate development, marketing, and contingency plans to
define our long range goals, raise awareness of the program, and have a plan
in place in case I can't be there in the future.
As we have already learned
from our experience with the SF Foundation funds, we also need to diversify
in terms of where we look for funding.
Breakout Session: Survivorship Education
This session provided an opportunity to network with Michael Magnaye & Joyce
Young of Asian and Pacific Islander National Cancer Survivors Network (very
important contact as we expand CARE to Chinese patients) and Randye Retkin of the
New York Legal Assistance Group.
Randye gave me a SF contact with the
Volunteer Lawyers of the SF Bar Assoc. We are interested in devoting a CARE
session to legal issues.
Randye also shared that Medical/Legal
collaborations get hospitals money by helping undocumented pts get MediCal,
etc.
General Session: Practical Evaluation Training for Public Health
Practitioners: John Librett, PhD, MPH of the CDC
In addition to reviewing and reaffirming many best practice principles of
evaluation, Dr. Librett also shared that 10% of a program's budget should be
devoted to evaluation. He also suggested that participants, speakers and
BOA members should be queried as to what they consider important areas to be
evaluated.
Dr. Librett mentioned that a 20% drop out rate is considered
very good (so we're doing great in that respect!) After the session, Flavia
requested that the speaker assist with evaluation of the CARE
Psycho-Educational Theatre Project - and he agreed!
So, all in all, the Lance Armstrong Foundation Conference was a valuable
experience in terms of content, networking opportunities, and celebrating
Lance Armstrong's victory with Austin.
*The CARE program received a grant from Lance Armstrong for a psycho-educational theater project.
Blue Walcer, MPH
San Francisco General Hospital
Hematology/Oncology Division
995 Potrero Avenue
Building 80, Ward 84
San Francisco, CA 94110
phone: (415) 476-4082 x409
fax: (415) 476-9233
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