Cancer cluster mysteries need focused research June 06, 2001 WASHINGTON (Reuters Health) - Federal and academic investigators who hunt the elusive causes of cancer clusters across the country told lawmakers Tuesday that researchers need better coordination of health data collection in counties and states in order accomplish their mission. While most cancer clusters can be blamed on smoking, poor diet, and other lifestyle factors, the public remains concerned that elevated cancer rates in their communities could come from pollution in the air, water and soil. Recent movies depicting environmental pollution and a link to cancer--including the hit "Erin Brockovich"--have helped stoke public fears. Still researchers remain hampered by information collection that relies on many different levels of government. States may keep data on cancer incidence, but information on local levels of possible carcinogens is often collected by counties, towns, or sometimes not at all, said Dr. Robert N. Hoover, the director of epidemiology at the National Cancer Institute. Also, few data registries include information on how long community residents have lived at their addresses. Such information is critical for determining the length of possible chemical exposures. Epidemiologists want better data coordination "so we know everything that goes on in a particular area," Hoover told members of the Senate Cancer Coalition. Federal agencies like the Centers for Disease Control and Prevention (CDC) play a role in helping to coordinate a national cancer registry, but much of the reporting relies on state systems that can vary widely. Consistent cancer reporting and environmental monitoring is especially difficult in rural areas, said Dr. Sue-Min Lai, an associate professor of preventive medicine at the University of Kansas. Scientists are "excited," Hoover noted, about a pilot project in Long Island, New York that is looking at ways to make studies easier by improving the efficiency and compatibility of cancer statistics and environmental data. "The faster we could acquire the high-quality data and then analyze it, the more answers we'd find," said Sen. Hillary Rodham Clinton (D-N.Y.). Clinton announced that the Senate Environment and Public Works Committee would hold hearings on Long Island next week looking into reported elevated breast cancer rates there. But giving researchers more access to health information raises concerns about protecting the patients' privacy. Recent debates in Washington, DC over the federal privacy protections for medical records have shown that scientists' wish to have as much data as possible often clashes with consumer groups' desire to protect privacy. Dr. David W. Fleming, CDC's deputy director for science and public health pointed to maps on display at the hearing depicting increased rates of lung cancer among white men in the southeastern US and increased rates of all cancers among women along the East and West coasts. "There is a danger at times of crossing a bounds [of privacy protection] where really it is difficult for researchers to generate this type of information," Fleming said. Sen. Dianne Feinstein (D-Calif.), who chairs the cancer coalition, is looking to introduce legislation later this summer that would revise the 1971 National Cancer Act to fund efforts to improve data collection surrounding cancer clusters, spokesman Jim Hock told Reuters Health. Some researchers asked lawmakers and the public not to put undo stake in cancer cluster investigations. Only 10% to 15% of 1,900 possible cancer clusters reported to federal and state officials in 1996 even showed actual increased cancer rates in specific areas. Only one study in history has definitively linked a cancer cluster to an environmental pollutant in a community, though others have linked occupational exposures to cancers in workers. "That's all we've ever found in the thousands of cluster studies that have been done," said Dr. William Wright, the chief of cancer surveillance at the California Department of Health Services. Breast Cancer News is brought to you by the The MID HUDSON OPTIONS PROJECT, INC Remember we are NOT Doctors and have NO medical training. This site is like an Encylopedia - there are many pages, many links on many topics. Support our work with any size DONATION - see left side of any page - for how to donate. You can help raise awareness of CAM.